THE COX KIDS HOMEPAGE
Cox Kids Homepage
Updates: Our family has been to hospitals and will be receiving more care which means travel and expences and time away from home. We really don't know where or how we will meet all the bills and co-pays which are extremly high. To see a specialist who is about all they see is $70.00 times three and if were at a hospital, we may see up to four in one day. That adds up fast. Then the medications not just for them but for Chris and I, we have a few now as well and the co-pays on some of these are horriable. Jake is not any better but he is hopeful knowing that he will hopefully gain weight being feed through a Peg or Port. He is wanting to move on with his life, get into school and while he knows he will have to start slow, he is hopeful that he will have more energy and that so much of what he has lost will be gained back. He has always been a high acheiver, always had to do the best he could. We did expect all our kids to do their best but Jake put that on himself. I know once he feels well again, he will soar. That is may prayer and that he will just gain and we will look for reasons but either way, when he gains enough, he will not loss again when it is taken out.
Grace will be having her own issues to deal with and we are praying that all is well with her Kidney and that she can have anything wrong, surgically removed without any cause for concern. She too is in the midst of working on where she wants to attend school and plans on taking some college courses this next year as a Junior. She has a full summer with so many appointments and studying for the PSAT and SAT. It's not so easy but she loves math and wants to go into engineering at this point.
Samuel is plugging along but he is pretty bored. We don't have any kids where we live and his siblings, well they aren't his age. So it's hard on him. We try to do things with him but he really misses his old friends.
We know we have to take the kids to another hospital soon as our doctor is retiring and Jake as well as Grace are outgrowing it there anyway. It is hard to say where we will end up. Home is a nice word. Yet no one knows what ObamaCare really means and we have State insurance which maybe good or bad. We will wait and see as we go to appointments throughout the summer. We are so blessed that Chris has a good Job here and he loves it. He is good at whatever he sets his mind to do.
Thanks to all who pray and keep us in their thoughts. We are truely blessed.
We have always put our faith in God but we made a huge mistake, he put them in ours hands and we know places to go but we have to choose wisley. Sorry I will erase and update soon but I am wiped out. God Bless you all and we love you all.
I have seen things and realise who the people in our lives really are and who deeply cares. It is hard to explain how awful it is to have your child come to you with awful pain all over. His hands and feet tingling and ice cold. His stomach in knots, Constant nasua and vomiting after forcing himself to eat. Watching your child suffer to the point of mental breakdown and it isn't nor has any of it been his control but all due to vital nutrients that we all take for granted. This family has been to the best and found that trying as hard as we can to keep of medications and chemicals and going natural as much as possible is the way God intended. Obvouisly, we can't cut out the IGG which is given through an IV or Sub Q and is all that was helping him. Then he became so thin that we couldn't even put the needles in as there isn't any fat and hard bumps remain that way now. We plan to start him on IVIG and get the treatments he needs. We need to find the right place for all three kids and we pray for a better finicial situation. the amount of money it takes to buy medication and probiotics and now all the shots of many vit. will only add to the long list. We thank Christ for those who help and have always helped. God will bless them and we thank Him for giving us a glimer of hope to end Jake's ordeal. We may have to feed through the G-Tube and medications through a port. It breaks our hearts to know how sick he was and medications could not help. Through it all, considering the length, I know that our son is one of the strongest people and his will to survive surpasses all understanding if not for the fact that he belongs to Jesus. http://www.b-12shot.net/b12-deficiency-symptoms/
The long long story: As babies the kids were so sick but life was great on Lake Winnebago! Attending church at Abundant Life Baptist and family around as well as friends, we had some hard times but we didn't know just how fortunate we really were! Once we moved, it was long traveling trips with just me and a 3, 8 and 11 year old. Always leaving two along and afraid, staying with the youngest, while preparing for procedures of surgeries or tubes of blood that actually made them anemic. We have up everything to save their lives by leaving home but an amazing thing happened, home didn't leave them! Something we never counted on, a miracle you can call itstraight from heaven but both their home town church of Abundant Life Baptist in Lee's Summit and their many friends and family would gather around us to support us. What went even further beyond the support, love and several fundraisers from the church was the community we lived in. Lake Winnebago Missouri. This was and in our hearts feel like home and we didn't want to leave but when someone says your kids need transplants or they will die, you leave the company you were invested in,, giving up all options and your dream home on a lake, you knew medical bills would destroy your credit but we didn't get the kickbacks, we lived in our travel trailer until our home sold. The community put theirselves in our position and they put their love in action. As losted below from two scriptures, God has allowed a miracle to help us stay on private insurance as only a few in the US know what they have and were free to make the best choices as we are doing for Jake, working to find a doctor who won't give up but will continue the fight. We have been told and we have watched our kids come close to death but they belong to a higher power and until He send for them to heal them eternally, no telling what these very special kids with these very special people will do!
As parents, there aren't words to describe, nor can we ever pay back but we can pay forward, helping those in need on our path and giving encourgement of how mankind working together can make all the difference in the world. To all those who began and continue Freezin for a Reason, we owe our children's lives, along with God of course. Your acts of kindness to one family who still want to come home and in our hearts it is home. Yet we must battle until we feel we have done all we can and the day our kids say, "lets go home" we as parents hold on because such people with such faith in us, who pray and think of us, carry us through some very dark times.
6th Annual Freezin For A Reason, Winnebago Wizzards true heros's. Each year, our home town supports our family through a very frezzin way! They ski in frigid temps of the Midwest Missouri Temps. Many gather, friends, church, family and they work so hard, give of time, food, prayer, money and love. This year's was a tremendous blessing and we thank with all our hearts every person who reaches out to help our family. We are constantly blown away by the love we feel. You all are helping to save our family! How can we express in words alone, what we feel. How can we repay, we cannot. We can share with you our deep commitment to faith. We have seen what it can do. We can pray this, that each of you are blessed back by His love and please know, we are here for anyone and just because we may need, doesn't give us an excuse to only take. We are here to listen, to do anything we can and most of all to love. God knows the heart and therfore, we can't fool Him. In the Bible their are two very different scripures: Dear Lake Winnebago and friends, these scriptures just came to me as I was reading oneday. I remember an older women years ago, who gave a lot to her at Lake Winnebago spaghetti dinner. She didn't really have it to give but she did and sent a letter telling me she wish it could be more and her prayers were with us. I feel the scripture below fits her well. It also holds true to even us, when we have been down, not helping another in need, doesn't excuse us. He expects all to give. It speads and soon others joined in from surrounding towns and news of old friends surfaced. The pure joy of helping begins to grow on some, other's always had it there. This is a story so deep and touching that we want others to hear of it. Most of all we thank God that He has allowed such blessings upon us. Our road is long and we face bills and illnesses we do not know how to battle but we know we have a group of amazing people who are battling it with us. Thank You, seems so small but it's all we can offer for now.
Luke 21:1] As he looked up, Jesus saw the rich putting their gifts into the temple treasury.  He also saw a poor widow put in two very small copper coins.  "I tell you the truth," he said, "this poor widow has put in more than all the others.  All these people gave their gifts out of their wealth; but she out of her poverty put in all she had to live on."
This scripture may fit some at Winnebago and friends, we do not know, we do know that God knows the heart of everyman and we know, that so many of you will be blessed when standing before Him. No matter what you believe, your lives will be blessed. Please, if their are any prayers we can give for any of you, we really want to know. Thank all of you.
1 John 3:17 But if someone who is supposed to be a Christian has money enough to live well, and sees a brother in need, and won't help him--how can God's love be within him ? 1 John 3:18 Little children, let us stop just saying we love people; let us really love them, and show it by our actions. 1 John 3:19 Then we will know for sure, by our actions, that we are on God's side, and our consciences will be clear, even when we stand before the Lord.
Grace, Sam, Jake, Vickie and Chris at Camp Sunshine Maine
Feel free to contact us via firstname.lastname@example.org. @yahoo.com please know we recieve and try hard to keep up on the e-mails but sometimes we may miss a few, forgive us and keep trying. Our family can be reached at 816-694-1040. We welcome gifts and go through either Rich Lapetria at816-213-3037 for Freezin For a Reason. http://lakewinnebago.org/ or facebook https://www.facebook.com/#!/group.php?gid=53106666027. Lake Winnebago Wizards
Our needs are tremendous and we have been blessed in so many ways. Yet we still are in need of some unanswered prayers. We are working hard to find the answers and ask prayer for those to be revieled.
Our E-mail Address Is Below
Grace, Jake and Samuel